Two years ago my youngest daughter was diagnosed with a rare auto-immune condition called Opsoclonus Myoclonus (OMS). Since then our family has had to adjust to a new way of life. My daughter has come a long way in the last two years with many ups and downs. She is so brave and hasn't let her condition keep her down. It is making her stronger. OMS is so rare that not many people, even doctors, know about it. I want to help raise awareness. The next page has a description of OMS. Thank you for looking!

Two years ago my youngest daughter was diagnosed with a rare auto-immune condition called Opsoclonus Myoclonus (OMS). Since then our family has had to adjust to a new way of life. My daughter has come a long way in the last two years with many ups and downs. She is so brave and hasn't let her condition keep her down. It is making her stronger. OMS is so rare that not many people, even doctors, know about it. I want to help raise awareness. The next page has a description of OMS. Thank you for looking!

Graphics from Eenas Creations. Logo off google. Photos are mine.

Graphics from Eenas Creations. Logo off google. Photos are mine.

scrapping lee says:
I too had never heard of this disease. Thank you for enlightening us and raising awareness. So sad that your little one has to fight such a tough battle at such a young age. My thoughts and prayers are with you and your family. xxx
Apr 3, 2015

Xguern66 says:
A sad but uplifting story what a wonderful brave little girl and family. Thank you for telling us about your lovely daughter - love and good wishes coming to you all from NZ xxxxx
Mar 13, 2015

MaryWonder says:
Beautiful uplifting page. I love your comparison to a superhero which is exactly what she is
Mar 12, 2015

Lori47 says:
Great description, loving family, super 2 pages! Sweet & uplifting.
Mar 12, 2015

ComputerGeek says:
Sometimes they are stronger than us. She is a sweetie and love your page
Mar 12, 2015

ScrapDaddy says:
Touching, tragic, but uplifting page. Such a brave little girl.
God bless her & your family. Beautifully scrapped. + Fav
Mar 12, 2015